Pengen banget bisa kumpul2 sama teman di indonesia senasib sependeritaan, dengan sesama acoustic neuroma'ers dan sesama penderita lumpuh wajah(facial paralysis)
Selain bisa sharing dan supaya kita merasa punya teman senasib dan tidak merasa menjadi orang dengan muka paling aneh sedunia :P
Selama ini ketemunya sama bule2 aja, itu juga sangat membantu sekali, apalagi kalo ketemu sama teman sebangsa, senegara dan sebahasa ya....
Udah bikin group facial paralysis (lumpuh wajah) indonesia, di FB, semoga ada yang nyangkut deh...
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betull bu.. mudah2an dengan mengumpulkan 'teman2' dapat menjadi hal yang positif untuk semua. saya dukung!!
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