Now that I found you stay...

Tadinya bikin blog ini buat catatan tentang my journey w/ AN, tapi kok malahan pengen curhat about anything else? heu heu... ;)

Duh...udah lama ga dengerin can't take my eyes off of you...,jadi flash back ke 12 tahun yang lalu...remembering someone that really matter to my life, I have story about this song, especially the lyrics... my own story I guess...and this song was the soundtrack of the movie we watched at our first date,

At long last love has arrived…and I thank god I’am alive…

Your just too good to be true…,

I need you baby to warm my lonely night…

Oh pretty baby don't bring me down I pray...

Now that I found you stay...

Let me love you baby..let me love you...

Always dzikrullah...

Bismillahirrohmanirrohiim..., lagi nunggu kiddoz parkir di dago asri, dapat tempat lumayan adem dibawah pohon. Miqdad lagi jum'atan, naila lagi di warnet facebook-an ma temen2nya. Tergiur juga nih denger cerita temen yang keranjingan film serial korea, kan asyik tuh sambil nunggu gini nonton film, tapi teringat nasihat guru kita abu amr, jadikan setiap aktivitas kita berdzikir sama Allah SWT, so..mendingan kita terusin hapalan, ayo mulai..Al Mursalaat..audzubillahiminnasyaithaanirodzim...

Takdir-Mu...

Kenapa baru kini aku menyadari bahwa selama ini aku telah banyak salah menapaki jalan?

Kenapa baru kini aku menyadari betapa bodohnya aku dulu?

Kenapa semua ini baru kusadari pada saat aku tidak bisa berbalik dan merubah jalanku?

Kini aku hanya bisa tertunduk dan menyadari bahwa ini semua adalah takdir dari-Mu yaa Allah yang maha mengetahui yang terbaik bagi hambanya.

-dalam kesedihan karena bandung ceudeum banget..hiks..

Innallaaha ma'ashabiriin...

Its not easy at all for me having paralized face with no sensation on one side, blurry vision and single side deaf, after 3 years i'm just hanging in there...try to grateful for many many other good things that Allah SWT gives to my life.

Pada saat hati tak bisa berkompromi susah untuk berikhlas, berusaha memfokuskan pikiran pada hal yang lain, bersabar dan berpikiran positif bahwa Allah pasti akan memberikan reward atas semua ini dan insha Allah jadi penggugur dosa2 aku ,aamien... innallaaha ma'ashabiriin...

New treatment offers hope for facial paralysis patients

by Lt. Col. Lesa Spivey
59th Medical Wing

1/14/2009 - SAN ANTONIO (AFNS) -- Patients seeking help for facial paralysis have a new treatment option available now offered by doctors at Wilford Hall Medical Center at Lackland Air Force Base, Texas.

Col. (Dr.) Alan Holck and Maj. (Dr.) Manuel Lopez are among only a few military or civilian surgeons in the country who perform a recently developed procedure called temporalis tendon transfer to treat patients suffering from facial paralysis due to conditions such as trauma, tumors, strokes, cancer, some surgeries and Bell's palsy.

The only other physicians who offer this treatment practice at Johns Hopkins Hospital in Baltimore.

The temporalis tendon transfer surgery can be performed in cases where injury to the facial nerve cannot be repaired or the nerve will not naturally recover. The procedure is relatively simple and straight forward. Only taking about 90 minutes to perform using one small incision (three centimeters), the surgery involves taking the muscle (the temporalis tendon) that controls movement and clinching of the jaw and re-inserting it into the musculature of the mouth (corner of the mouth) to restore movement and function.

The process of this dynamic muscle transfer is a promising option for facial reanimation in patients for whom nerve repair, grafting and nerve transfer are not possible.

"Loss of the facial nerve can be devastating and life-changing. The nerve provides motor movement to the face (overall facial animation). It allows you to smile, chew, close your eyes and raise your eyebrows," Dr. Lopez said.

"From the top of the face down, the problem usually starts at the brow which causes problems closing the eye," Dr. Holck said. "Subsequent drying of the eye can result in infections and loss of vision. The midface droops. The corner of the mouth also descends and, therefore, drinking becomes a problem. Patients will drool and have difficulty eating. Food tends to get lodged in their mouths. You become almost a social leper because you don't want to go out and keep having to get up to go wipe your mouth. And among other issues, the tip of the nose deviates and so it is really a problem. It is most importantly a functional issue but also has a devastating cosmetic component."

In addition to the temporalis tendon transfer, Dr. Holck and Dr. Lopez complete their comprehensive treatment by performing any necessary static procedures (pulling, tightening and lifting parts of the face) that do not involve muscles or nerves. Static procedures elevate and give symmetry to the face.

"An operation we'd do commonly is to elevate the eyebrow and that is a static elevation in which we restore symmetry from a droopy eyebrow to a more symmetric eyebrow. The upper eyelid generally doesn't close when you have a facial paralysis so what we do is put a weight, either platinum or gold, in the upper eye, to help the eyelid close to protect the eyeball. The lower eyelid generally won't have tone either (when the nerve is no longer functioning) so we elevate the lower eyelid to narrow the space between the two, for better closure, and we support it. Those are all standard procedures we've been doing as part of our comprehensive treatment," Dr. Lopez said.

The doctors have been performing the temporalis tendon transfer surgery for 16 months and have successfully treated nine patients.

The course of treatment for each patient is determined by a complete, individualized facial assessment in which each patient's deficits are determined.

"No one gets a blue-plate special," Dr. Holck said.

Milan Maymar, a cancer survivor, has benefitted from the successful treatment he received from Dr. Lopez.

"I was very skeptical at first. After consulting five plastic surgeons, Dr. Lopez was the sixth doctor I came to for help. Dr. Lopez' upbeat attitude, encouragement, skills and confidence quickly made me believe it was possible that something could be done to help me. Now that I've had the treatment, my speech has improved and my eye functions better. The results were even better than I anticipated," Mr. Maymar said.

When asked why only a small number of patients have been treated so far, the doctors said the numbers are not greater due to lack of awareness that the treatment is available. Many times, patients are turned away by other facilities and told there is nothing that can be done for them. However, Wilford Hall's team of doctors wants to get the word out and encourage others needing treatment to seek help.

Historically, the treatments for facial paralysis have not been great or long-lasting. But this new procedure, the temporalis tendon transfer, has proven to be a more efficient and effective method. The surgery takes minimum time to perform and the recovery is rapid with dramatic improvement expected within the first week.

"Patient satisfaction has been tremendous," Dr. Lopez said. "We're passionate about it. Just being able to restore function back to them is extremely rewarding for us."

http://www.af.mil/news/story.asp?id=123131301

Changing mood :(

Bismillah,

Hari ini udah masuk minggu ke 8 post. operasi, badan terasa udah baekan tapi pelan2 banget ya..? kadang masih sering terasa lelah banget padahal cuman doing little thing, katanya 1 jam operasi otak perlu 1 minggu recovery, tapi yang paling terasa itu mood aku cepat sekali berubah-ubah, kayak PMS aja rasanya. Cape dan ga enak juga...

Waktu operasi yang pertama dulu sepertinya ga kayak gini deh....atau aku udah lupa ya?
Mau olah raga juga rasanya ga yakin...aku cuman jalan bentar diluar aja langsung ngos2an....

Hari ini Naila ultah ke 10..., mulai 2 digit umurmu nak...pokoknya our prayers and thoughts always with you sweety....
Besok rencana ke jakarta, miqdad pengen ke sea world (again..n again...) dia seneng banget sama binatang2 yang hidup di air...dan tujuannya kali ini pengen lihat mantarai..what is that? aku sendiri ga ngarti....

Facial nerve paralysis

Tumors

A tumor compressing the facial nerve anywhere along its complex pathway can result in facial paralysis. Common culprits are facial neuromas, congenital cholesteatomas, hemangiomas, acoustic neuromas, parotid gland neoplasms, or metastases of other tumours.

Patients with facial nerve paralysis resulting from tumours usually present with a progressive, twitching paralysis, other neurological signs, or a recurrent Bell's palsy-type presentation. The latter should always be suspicious, as Bell's palsy should not recur. A chronically discharging ear must be treated as a cholesteatoma until proven otherwise; hence, there must be immediate surgical exploration.

Computed tomography (CT) or magnetic resonance (MR) imaging should be used to identify the location of the tumour, and it should be managed accordingly.

Oftentimes, since facial neoplasms have such an intimate relationship with the facial nerve, removing tumors in the facial region becomes perplexing as the physician is unsure how to manage the tumor without causing even more palsy. Typically, benign tumors should be removed in a fashion that preserves the facial nerve, while malignant tumors should always be resected along with large areas of tissue around them, including the facial nerve. While this will inevitably lead to heightened paralysis, safe removal of a malignant neoplasm is worth the often treatable palsy that follows. In the best case scenario, paralysis can be corrected with techniques including hypoglossal-facial nerve anastomosis, end-to-end nerve repair, cross facial nerve grafting, or muscle transfer/transposition techniques, such as the gracilis free muscle transfer.

en.wikipedia.org/wiki/Facial_nerve_paralysis -

What is an Acoustic Neuroma?

An acoustic neuroma (sometimes termed a vestibular schwannoma or neurolemmoma) is a benign (non-cancerous) growth that arises on the eighth cranial nerve leading from the brain to the inner ear. This nerve has two distinct parts, one part associated with transmitting sound and the other with sending balance information to the brain from the inner ear. The eighth nerve, along with the facial or seventh cranial nerve, lie adjacent to each other as they pass through a bony canal called the internal auditory canal. This canal is approximately 2 cm (0.8 inches) long and it is generally here that acoustic neuromas originate from the sheath surrounding the eighth nerve. The seventh or facial nerve provides motion to the muscles of facial expression.

Small Acoustic Neuroma	Medium Acoustic Neuroma	Large Acoustic Neuroma

Acoustic neuromas usually grow slowly over a period of years. They expand in size at their site of origin and when large can displace normal brain tissue. The brain is not invaded by the tumor, but the tumor pushes the brain as it enlarges. The slowly enlarging tumor protrudes from the internal auditory canal into an area behind the temporal bone called the cerebellopontine angle. The tumor now assumes a pear shape with the small end in the internal auditory canal. Larger tumors can press on another nerve in the area (the trigeminal nerve) which is the nerve of facial sensation. Vital functions to sustain life can be threatened when large tumors cause severe pressure on the brainstem and cerebellum. Tumors are typically described as small (less than 1.5 cm), medium (1.5 cm to 2.5 cm) or large (more than 2.5 cm).

Are Acoustic Neuromas hereditary?

No. Although there is an inheritable condition called neurofibromatosis type 2 which can lead to acoustic neuroma formation in some people, most acoustic neuromas occur spontaneously without any evidence of an inheritable pattern.

How often do Acoustic Neuromas occur?

Most recent publications suggest that the incidence of acoustic neuromas is rising. This is because of advances in MRI scanning both on incidental scans and for patients experiencing symptoms. Studies in Denmark published in 2004 show the incidence is 17.4 per million or close to 2 persons per 100,000. Most acoustic neuromas are diagnosed in patients between the ages of 30 and 60.

Cause or Etiology of Acoustic Neuroma

Many patients inquire about the cause of the tumor. There is a growing body of evidence that sporadic defects in tumor suppressor genes may give rise to these tumors in some individuals. Other studies have hinted at exposure to loud noise on a consistent basis. One study has shown a relationship of acoustic neuromas to prior exposure to head and neck radiation, and a concomitant history of having had a parathyroid adenoma (tumor found in proximity to the thyroid gland controlling calcium metabolism). There are even controversies on hand held cellular phones. Whether or not the radiofrequency radiation has anything to do with acoustic neuroma formation, remains to be seen. To date, no environmental factor (such as cell phones and diet) has been scientifically proven to cause these tumors.

from http://www.anausa.org

...after all 3 stressful years...

Bismillah,
Assalamu'alaikum...

Yupz, alhamdulillah tanggal 18 agustus kemaren akhirnya aku menjalani operasi ke 2 pengangkatan acoustic neuroma, setelah 3 tahun watch and wait, the decision has had made, setelah mengetahui dari hasil MRI bulan juli 2009 my AN tumbuh 2-3 mm within 3 years.

Alhamdulillah operasinya lancar, operasi untuk pengangkatan AN sendiri takes about 8 hours plus TTT(Temporary Tendon Transfer) for about 2 hours..

Selesai operasi langsung masuk ICU (ini prosedur standar untuk operasi otak), di ICU sempat tersadar dengan keadaan sangat tidak enak, mual yang amat sangat, muntah2, double vision, ga bisa buka mata sama sekali, sekali buka mata langsung muntah...,bekas operasinya sendiri ga kerasa sakit. Sempat ingat dokter nepuk bahu and said..your tumor has gone Jul..., waktu itu aq antara sadar dan tidak, yang teringat kayaknya aku marah2 karena keadaan yang sangat tidak enak...

Antara sadar dan tidak pula suster memindahkan aku dari tempat tidur and said...MRI dulu ya bu..., mata terbuka sedikit dan terlihat aku sudah ada dalam lubang mesin MRI, setelah itu...blank lagi...

Sudah lebih sadar, suster membawaku ke ward, diluar pintu ICU suster memanggil-manggil "keluarga bu julia..." tapi ternyata dekki lagi ga ada...sedih...terasa...